Harris-Wellbeing Preterm Birth Research Centre
Harris-WellbeingPreterm Birth Research Centre 

General Data Protection Regulation (GDPR)

One of the biggest changes to UK data privacy law comes into effect on 25 May 2018.  The General Data Protection Regulation (GDPR) EU2016/679 will replace the Data Protection Act 1998. 

 

As a University and NHS organisation we use personally-identifiable information to conduct research to improve health, care and services.  As a publicly funded organisation, we have to ensure that it is in the public interest when we use personally identifiable information from people who have agreed to take part in research.  This means that when you agree to take part in a research study, we will use your data in the ways needed to conduct and analyse the research study. Your rights to access change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained.  To safeguard your rights, we will use the minimum personally identifiable information possible.

 

Health and care research should serve the public interest, which means that we have to demonstrate that our research serves the interests of society as a whole.  We do this by following the UK Policy Framework for Health and Social Care Research.

 

If you wish to raise a complaint on how we have handled your personal data, you can contact our Data Protection Officer who will investigate the matter.  If you are not satisfied with our response or believe we are processing your personal data in a way that is not lawful, you can complain to the Information Commissioner’s Office (ICO).

 

For general enquiries at the Liverpool Women’s NHS Foundation Trust, you can contact the Head of Confidentiality and Data Protection on 0151 702 4386 or by writing to:

 

Data Protection Officer

Liverpool Women’s Hospital

Crown Street

Liverpool

L8 7SS

 

Further information and advice on University of Liverpool related matters can be obtained from Vicki Heath (Data Protection Officer 0151 794 2148) or email; V.Heath@liverpool.ac.uk

 

Research

 

The Development of Novel Biomarkers for Preterm Labour

 

IRAS Project ID:

86655

Short Study Title:

The development of novel biomarkers for predicting pre-term labour

REC reference:

11/NW/0720

Ethics Committee:

 North West - Liverpool Central Research Ethics Committee

Sponsor:

Liverpool Women’s NHS Foundation Trust

 

Liverpool Women’s NHS Foundation Trust will collect information about you for 'The development of novel biomarkers for predicting pre-term labour' research study from patient records. This information will include NHS number, date of birth and health information, which is regarded as a special category of information.  We will use this information to compare health and birth outcomes for all women who have provided consent to take part in the 'The development of novel biomarkers for predicting pre-term labour' research study.  The processing of personal data for research is a task in the public interest.

 

When you agree to take part in a research study, the information about your health and care may be provided to researchers running other research studies in this organisation and in other organisations.  These organisations may be universities, NHS organisations or companies involved in health and care research in this country or abroad.  Your information will only be used by organisations and researchers to conduct research in accordance with the UK Policy Framework for Health and Social Care Research.

 

This information will not identify you and will not be combined with other information in a way that could identify you.  The information will only be used for the purpose of health and care research, and cannot be used to contact you or to affect your care.  It will not be used to make decisions about future services available to you, such as insurance.

 

Additional information about research and general use of patient information is available on the NHS Health Research Authority website https://www.hra.nhs.uk/information-about-patients/

 

We are located at:

Harris-Wellbeing Preterm Birth Centre

University of Liverpool

1st Floor, Liverpool Women's Hospital

Crown Street

Liverpool

L8 7SS

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